These are various article I've written over the years about living with ME/CFS. My case is fairly severe - I'm bedridden and homebound and so the things I write about are usually relevant to people who are themselves bedridden/homebound.
What Do You Do All Day? explores how I fill my day and make it feel fulfilling, even though I'm stuck in bed.
Using A Computer/Smartphone/Tablet From Bed is a compendium of 25 years of knowledge of methods and strategies of for using computers (and tablets and phones) from bed when one needs to lie flat, or nearly so.
Slowing Audio And Video Down For Better Access describes how to do exactly that on a variety of platforms and apps. Slower audio/video is less fatiguing and less stimulating to the nervous system for some people - if you have trouble listening to regular speed audio/video, it might be worth exploring.
Twitter thread with ideas for AAC augmentative and alternative communication options for people whose ME/CFS is so severe that talking is difficult or impossible for them may also be useful to some.
Using A Computer/Smartphone/Tablet From Bed is a compendium of 25 years of knowledge of methods and strategies of for using computers (and tablets and phones) from bed when one needs to lie flat, or nearly so.
Slowing Audio And Video Down For Better Access describes how to do exactly that on a variety of platforms and apps. Slower audio/video is less fatiguing and less stimulating to the nervous system for some people - if you have trouble listening to regular speed audio/video, it might be worth exploring.
Twitter thread with ideas for AAC augmentative and alternative communication options for people whose ME/CFS is so severe that talking is difficult or impossible for them may also be useful to some.
